“Facts are Facts and Will Not Disappear on Account of Your Likes”*

“Facts are stubborn things; and whatever may be our wishes, our inclinations, or the dictates of our passion, they cannot alter the state of facts and evidence.”
~John Adams, from The Portable John Adams
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I’ve always loved this quote, and it seemed the perfect way to begin my newest blog postings on the American Journal of Managed Care (AJMC)’s Contributor’s Page.  Those who regularly read my blog here know that in my roles as a cancer research advocate, patient, and cancer survivor, I’m always deeply concerned about anything that interferes with evidence-based, patient-centered clinician and patient decision-making.  This includes governmental mandates that are not rooted in the science, but rather, stem from political ideologies, agendas, or biases–as well as misleading, inaccurate, or overly simplistic dialogues about complex medical topics in the popular media that may lead folks to make potentially dangerous decisions about their health due to such misinformation.  I’m similarly concerned when the facts surrounding such complex information become inadvertently buried due to passionately held opinions or, far too often, purposefully due to inconvenient facts that are contrary to one’s mission or agenda.  That’s why I found it so important to express my concern as a patient advocate about the newly proposed Medicare Part B Drug Payment Model regarding its level of transparency and the evidence.  This is a critical issue, where it’s important for all Americans to get past the noise, emerge from the avalanche of misinformation, and learn the facts about this proposal, one where the first part of this Medicare experiment is deeply flawed (and, IMHO, should be completed eliminated), yet the second portion proposes value-based pricing when appropriately supported by high-quality evidence, including published randomized controlled trials, reviews, or evidence-based clinical practice guidelines.  Thus, I hope that you’ll click below to read my three-part series at the American Journal of Managed Care, entitled:
(*The quote that forms the title of this posting is from Jawaharlal Nehru, leader of India’s nationalist movement, India’s first prime minister after its independence, and Indira Gandhi’s father.)

 

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15 Random Facts

I’m an avid reader of “Nancy’s Point,” and she just posted a wonderful idea, challenging all of us who are also bloggers to post 15 random facts about ourselves.  I truly enjoyed learning more about Nancy through the facts that she posted, and as she said so well, “We are all about so much more than cancer.”  So I’m happily taking Nancy up on the challenge, and I hope that you, my wonderful readers, will also share a few things about yourselves here by leaving a comment on my blog.  So here it goes (with apologies if you know some of the below from previous blogs):

  1. I have one younger sister, who is brilliant, hilarious, extremely talented artistically, beautiful, opinionated, loving, and unique in all the right ways. I’m blessed that she is my sister, and she is the best friend that anyone could ever have.  My mother and father were married very young and had my sister and I when they were in their early 20s (I can’t even imagine!).  They both still look so young for their ages (they’re now in their early 70s).  They’ll say that I can’t be objective, but my mother is gorgeous, and, as the kids today would say, my father is still a “hottie”!  I’m incredibly close to both of my parents, and I thank God that I’m their daughter every day.
  2. I’m impatient: I know that “patience is a virtue,” but damn, this is a tough one for me to achieve. I hate waiting in lines, despise going through airport security, drive much too fast (though I’ve improved a bit there), and resent having to go through endless “phone trees” when you have to keep shouting “YES” or “NO” to the automated voice’s endless questions, never get a real person, and are then disconnected!!! (Yes, this did happen to me just recently. 😉
  3. My husband and I just celebrated our 22nd wedding anniversary yesterday on July 10th!  And my parents just celebrated their 52nd (holy cow!)
  4. I absolutely adore all dogs and puppies, but am particularly in love with springer spaniels (sorry, I know that most of you are well aware of this). I believe completely that puppies are the cutest beings on the planet, and I’m much quicker to open my arms to a puppy than a baby. (I know some of you think that’s just terrible, but it’s true!)  I also definitely would not consider myself a cat person, although I do love cats that are particularly affectionate—in other words, more like dogs!
Deb and Little Miss Molly

Deb and Little Miss Molly

5. Each of the men (boys?) I seriously dated in late high school and college were of Irish descent,as is Marty, my husband (obviously, based on my last name, right?). I’m of Russian, Romanian, and Austrian descent.  Maybe I was Irish in a past life?

6. I’m a voracious reader and always have at least one book going. I primarily read fiction, but lately, I’ve also been enjoying non-fiction on some fascinating topics.  I love the latter, because I always feel like I’m learning something—but tend to have a novel going at the same time to make sure that I’m relaxing and not using “too much” of my brain. 😉  I also love almost nothing more than writing and the feeling I often get of slipping into the “zone,” where I’m so deeply absorbed in what I’m writing that I lose track of time, space, and everything around me.

7. If I could have pasta or lasagna for dinner every night, I would be a happy girl.  Maybe I was Italian in a past life?

8. My favorite bands have been and will always be Pink Floyd, Steeley Dan, the Grateful Dead, and Fleetwood Mac (boy, am I dating myself or what?). But I also enjoy Norah Jones, Adele, Cracker, Old Crow Medicine Show, ‘Keb ‘Mo, classical music–I guess I could go on and on.

9. I’m Jewish, and my husband is Catholic. Although he is much more devout than I am, being Jewish is an enormously important part of who I am.

10. When my husband and I were married, we agreed that we did not want to have children. We felt that way for years … but right around the time I turned 40, we started talking about perhaps changing our minds. I was almost there, thinking ‘Yes, I think that I really do want to have a child,’ and I began literally seeing our little girl in my dreams at night.  And it was then that I learned I could not have children.  It turned out that the chemotherapy I’d had in my early 20s took this choice away from us.  I was on the pill during my treatment and did not go off of it until my late 30s due to my heart issues.  Apparently, being on the pill for all those years had masked signs of perimenopause, which became clear months after my coming off the pill.  I know that it may seem strange, since for so long, we had decided not to have children, but I’m angry about this: after all, this was our choice to make, and when we finally got to the point where we were ready to change our decision, this option was taken away from us.  I have not seen our daughter in my dreams recently, and I miss her.  No doubt, that also may seem strange.  But I’m hoping that because I finally wrote about this, I’ll see her again in a dream very soon.

11. I absolutely love being a cancer research advocate. I hate the reasons responsible for my becoming one. But I have learned so much, engaged in such important work as a result, and have met and worked with so many remarkably special, talented, loving people, where our paths would never have joined had I not been personally affected by cancer.

12. I have zero tolerance for folks who seem to relish bringing problems to your attention, but never want to hear about working together to find solutions.

13. I was painfully shy throughout my childhood and didn’t really break out of this until I was in my early 40s when I became an advocate.

14. I get very upset with people who seem to be oblivious to those around them and have no sense of common courtesy. Have you ever gotten behind that person at the grocery store who is taking up the entire aisle and then seems peeved when you say, “Excuse me” as you’re trying to get by? How about the so many folks who absolutely refuse to switch to the left lane when you’re coming down the entry ramp and trying to merge into the right lane of the highway?  Or what about when there is a traffic jam, everyone needs to merge from two lanes into one, and that one A-H drives down the breakdown line until the very last second and then jumps into the lane, holding up everyone—and inevitably encourages other losers to immediately follow his example?  Hmm: I see that many of these are traffic related; I wonder what that says about me? 😉

15. Though I’ve had to deal with serious health issues beginning in my early 20s, and though every adult decision I’ve ever made has had to take health insurance and my medical history into account, I love my life and feel blessed for every moment that I’m here.

Wow: writing this was quite a cathartic experience!  Nancy, thank you so much for your inspirational challenge!  And my wonderful readers, please join in!  I’d love if you would share some random facts about yourselves here, so that I can also get to know you better–and learn more about your likes, dislikes, what you find hilarious, your pet peeves, what matters most to you, and what brings you the most joy.